Ten Bucks.

doing my bit(2)

I didn’t know, before I started blogging, about the factor that makes people want to read posts.  I have looked at my stats with newbie fascination, marvelling at the things people actually want to read.  The things I thought people would want to read, they barely click on.  The things I bang out off the cuff suddenly going viral. It’s a weird thing. Looking over my stats I can see that when I write about what really matters to me, the issues really socking it to my heart, people read more.  Unless, I am talking about raising money. When it comes to posts about fundraising, people look, then look away.

I’m amazed how hard it is to fundraise for something.  I’ve never done it before. Without a trendy kind of thing to fundraise for or a clever marketing brain, it is like pulling teeth by remote.  It shouldn’t be that painful.

Dysautonomia research is not a children’s hospital ward in need of upgrade.  It’s not boobs. It’s not shaving our heads for a cure.  There are so many wonderful, worthy causes out there.  People get tired of donating.  And here I am asking for more. Making just one more demand on the dollar. Dysautonomia research funding is a teeny little corner of the funding universe.  It is promoted by people who are sick. Who don’t have fundraising expertise.  There is only one official fund for Dysautonomia Research because there is so little research going on.  There will be less going on if we can’t rally behind and help to fund it.

We need to raise $10,000 by December.

Michelle Roger, Australian poster girl for Dysautonomia, has been valiantly forging on with her fundraising efforts in spite of significant setbacks this year.  She has already managed to raise over $4000. It’s taken an enormous effort across ten months.  Wonderful donors have contributed to the fund already.  Are you among them?  Thank you!

I’ve been contemplating why it is so hard to raise funds for our cause. And I think it is because people like Michelle take on the lion’s share of the effort and everyone else leaves her to it.  We need a little Dysautonomia movement.  A group effort.

We still have $5000ish to raise to make the target.

And I want to ask something of you, especially if you haven’t seen the fund before.

Can you scrape together ten bucks?

You don’t need to donate big buckaroos.  Tiny drops, together, form an ocean.

Michelle has been feeling so despondent about the fund, understandably.  It has taken true grit to get it this far. It’s time our whole community started to pull together …it’s too hard for one person to shoulder all that responsibility.  We need to acknowledge the superhuman efforts she and her donors have already made.  We need to talk to the people we know!

We need to find ten bucks, people!  Or ten more.
The cost of two coffees.  A bottle of nail polish. A book from the bargain bin.

If you are kind hearted, please share this image on your facebook page.  Attach this link.  Help me, please, to get the word out.  If you are the awesome person I think you are, can you find that ten bucks?   It’s easy to donate… just click here.

Can we make the target by December?  If you, and me and the people we know can find ten bucks.  You bet we can.


Doing My Bit…

Fundraising for a rare illness is a tough gig.  We don’t have marketing teams or big business sponsorship. There isn’t a Dysautonomia Awareness holiday, although October is unofficially our awareness month.  Down here in Australia and New Zealand, our numbers are quite small.  There are around 400 of us across Australia and New Zealand, that we know of. We do our bit any way we can.  For some of us that means raising awareness by typing our stories out onto the web.  Maybe we host cupcakes-for-a-cure sales or write letters or lobby government with regards to medications access and other related issues. 

My friend Michelle over at the hilarious Living With Bob blog has started up an online donation page to help raise funds for the Baker IDI institute in Australia.  They are conducting research specifically into disorders related to syncope (fainting).  Every Dysautonomiac has had to deal with that scary side of things at some time in our illness. The things they may find in their research are the closest thing to dysautonomia research in this part of the world.  It’s important that we help in any way we can.  But we are a small group of people and most of us are too sick to do fundraising runs, awareness feats worthy of media attention, or much of anything that is going to inspire people to reach into their pockets to raise money for research.  It’s a frustration that perpetuates the invisibility of illnesses like ours in the wider community.  We aren’t well enough to push for attention, but we need it.  So today, I’m letting my fingers do the talking.

Because Michelle has so valiantly taken on the task to raise money for research, and perhaps because she has been feeling too crap lately to get vertical, I felt like it was time we all pull together and lend some support to her fundraising efforts.  Here is a link to her fundraising page.  I will be coming up with some other ways to help Michelle raise money for Dysautonomia Awareness as we draw closer to Dysautonomia Awareness Month.  But for now, I thought I’d introduce you to her efforts.  Maybe you can help.  Maybe you know someone who could help?

Here she is, clicking her Dorothy heels for Dysautonomia.

Fall Seven, Get up Eight(7)