Constance Hall and the F Bombs

Being REAL in a world full of curated gorgeousness is so needed.  We are all so desperate for a breath of fresh air!

'A Queen is a woman who just wants to love other women and not do that bitchy thing that so many of us do,' says Constance Hall.
‘A Queen is a woman who just wants to love other women and not do that bitchy thing that so many of us do,’ says Constance Hall.  (photo source abc.net.au)

 

Constance Hall is refreshingly real. She’s the actual ‘Bad Mom’ (have you seen that movie?  I hated it, but I got what they were trying to say… it’s time to let go of the ridiculousness between women that exists in mama-land).  She’s a skate-in-sideways chick. An Australian sensation, mother of 4 and insanely popular mummy blogger. And she has just released a book. It’s about her, about mothering four kids. It’s a no-holds-barred look at relationships and life after babies.

bookcoverconstancehall

Today I went to her book release Q & A session hosted by The Women’s Collective and the Pullman Hotel in Auckland. I knew she would be irreverant, I knew there would be some shock-factor stuff, because that is her trade. I knew there would be challenging statements, because she is the Constance Hall of the recent social media cyclone over the ditch (a fellow mummy blogger let rip about Con’s manner of mothering and Con retaliated. It sparked a ‘mum war’ on the internet). I stayed well clear of it because I hate the nastier side of social media. It makes me so sad.  But I was curious about this raw kind of mother. The tell-all kind of mum. It bucks the trend alright, I wanted to see if she was just a sensationalist, or if there was something deeper driving her work.

Me and my fellow Queens this morning, Trudy and Pascale.
Me and my fellow Queens this morning, Trudy and Pascale.  Yep, I am a Big Bird, and no, I am no longer going to stoop to try to be more diminutive than I am!  #tallgirlsproblems

I was fascinated. Con (we’re at nickname status already cos that is how she rolls) blew onto the stage like a kind of mini tornado. Her hair was frizzy in a way I recognise from my own morning mirror, but on top of it she was wearing a crown of flowers and jewels. She’s tiny in stature and massive in presence. You could say she kind of exploded onto the podium like a freak weather bomb; blowing in out of nowhere and taking off the roof.  Within two minutes she had reassured us that she was wearing undies, unlike the other four days she’d been in New Zealand, because she’d be catching a plane later and she needed somewhere to hide her wee. Her humour is as raw as she is and the whole way through her talk, f-bombs exploded like colourful fireworks, punctating her florid discussion. She’s kind of like what would happen if you could cross Frida Kahlo with Reese Witherspoon and Whoopi Goldberg. Kapow!

I loved her. I think everyone in the room did. I loved that she said out loud some of my hidden, inner thoughts. I even loved all the f-bombs, because they made us laugh. I dated a comedian in my younger years, he always said that people laugh at what they relate to, especially when it is rude. And because every human being can relate to toileting, sex and death, regardless of their individual circumstances, most comedy covers these subjects. It’s just funny for us to see our not-talked-about experiences mirrored by others. It makes us feel more normal. Apart from wees and poos, Con’s Q & A covered: marital sexy time, break-ups, behaviour management (of kids and husbands), dealing with a history of abuse, death of children and grandparents, suicide, wine, why it’s best not to fight in front of kids, the age-old working mum vs. stay at home mum debate, the importance of support, multiple birth mothering, dyslexia, The Sisterhood, dealing with judgmental people and the importance of connection.

I can’t wait to read her book; Like a Queen. She’s just adorable. She makes the very hard job of mothering feel so much more achievable. She makes us feel like we’re doing a great job. Like everyone has days when it goes to custard. I think we forget that, in our intensity around getting it right.  We forget to cut ourselves some slack occasionally. We forget that having a loving mother is much more important than any other type of benefit we can achieve for our kids.  That having a loving mother is more than many kids have.

There were tears today from we women in that packed out auditorium. Tears of recognition and relief.  I’ve come a long way since the early days of parenthood and my babies are much older than most of the little ones at the venue today, but the message was as relevant to me as for the new mums there.
Take a deep breath. Do you love your kids? Do they know it? Love wins, every time. And you know what? Extending a bit of that love in your own direction is a brilliant idea too from time to time. Might just stop you from losing your mother-f#$%ing mind!

This afternoon, I’m going to assess the impact of Cyclone Con. I reckon she demolished a few of the ideas in my head that were damaging my peace of mind. I am grateful. Who needs perfectionism anyway? All it has ever done for me is give me reasons to feel like a failure.  Good to see that particular idea hitting the dirt. And what  purpose comparison? See ya, wouldn’t wanna be ya. And that ol’ flower, success? It’s moved into a new neighbourhood. Into the love camp. Over there I am already a raging success and that matters more than anything else.  I’m going to make like Queen Con, and take heart that my heart is the most important part of mothering.

Open your windows, let the winds of change blow out some of your cobwebby corners, too. It’s liberating!

If you’re keen, you can buy Like a Queen, here: www.likeaqueen.com.au

8 Great Things you can do to Live Well with Chronic Illness.

I sat yesterday morning in the infusion centre beside a beautiful woman called Christine.

We always try to sit together when our dates coincide in the infusion room at Auckland City Hospital. She goes more regularly than I do, for her regular vials of IV Immunoglobulin.  Every fourth Monday since we first met, we’ve been sitting together while her IVIG boosts her fight against Myasthenia Gravis, and my Pulse Methylprednisolone suppresses the cause of my Pandysautonomia. She’s great company.

I am always impressed with Christine.  In the face of some truly difficult and devastating challenges, she always looks beautiful and is beautiful.  Carefully groomed, well dressed with such a warm and  lovely nature.  She always has a bag full of occupations to keep her busy.  Yet, she makes time to chat, to ask how things are.  She remembers my kid’s names and cares about what they’re up to. She works part time as an English tutor and is studying the Maori language in her spare time. She is a devoted mother and grandmother, wife, neighbour, online patient forum member, and friend to many. I honestly can’t comprehend how she manages all of those things, every day, and a severe chronic illness as well. But her example makes me want to be better at living with chronic illness. She has made me think more about all the things that we can try to do, to distract, manage, cope with and transcend chronic illnesses.  She is one of the people I look to for guidance, carefully watching how they do it. There are some incredible people out there to learn from, I bet you know some too.  You probably see one of my sources every time you look in the mirror!

B(4)

Here are the 8 of most effective ways of overcoming I have observed in the world of chronic illness.
Some strategies:

Get Right-Brainy

Knit, crochet, write, listen to music, paint, sew, create, play an instrument, make, or do whatever it is you can do within your ability. Remember the complete satisfaction of creativity? It’s transformative, distracting, wonderful.  Listen to creative people talking about their creativity. Invite creative people over to teach you techniques. Watch YouTube tutorials. Do some online courses. Search for ideas. If you can, attend cultural events, musical recitals, the ballet, a musical, a movie festival, poetry reading, gallery or museum.  If you can’t, visit them online.

 

Source: http://meetmeatmikes.com/craft-saves-the-day/
Used with the generous permission of Pip Lincolne: http://meetmeatmikes.com/craft-saves-the-day/

Get Involved

Participate in the initiatives and events being organised by your patient groups on facebook and elsewhere.  Get to know others. There is so much soul-food in the solidarity of people who have travelled the same paths as you. Engage with them. Help fundraise for research. Get the word out in whatever ways are available to you. Post, and comment in patient forums. Ask questions, help out with the knowledge you have gained on your journey already. Finding your tribe is so good for you.  So affirming.  And there are always avenues to be proactive about the circumstances chronic illness has given you. Being an involved member of society is a wonderful way to begin to overcome.

Get Ready

I have spent days that became weeks that became years, living in old jeans, t-shirts and sweat tops, or staying my PJs. It made me feel even more grey and unattractive.  If you can manage it, find a position that works for you near a mirror and put on some makeup. Brush your hair and find something nice to wear, even if it is simply a favourite scarf. Sometimes, getting ready for the day, even if it is likely to be the same as yesterday, makes you feel a little brighter.  I don’t understand the psychology of that, but it just somehow seems to work. When my Mum was battling ovarian cancer, she spent some time with the good people of the ‘Look Good, Feel Better’ Foundation. She came back armed with bags of goodies, a stunning make up look they had helped her to create and new ways of styling her headwear. She walked taller, smiled more and reported more energy when her lippy was on. It’s a kind of magic for the self esteem, somehow.  A lesson I need to remember more often.

It changes how you see yourself, which

Get Outdoors or Bring it In

Even if getting out takes enormous scheduling, incredible effort and results in days of payback, try to get out when you can. Try to make it into the outdoors to look at the beauty of that sky, to breathe in that fresh air and feel a breeze on your cheek.   Even rain feels incredible when you have been stuck inside for too long. I have never felt so amazing as when I floated in the warm sea on my back, blue sky above and white sand below. It’s so therapeutic. We are born for nature.  If you are bed-bound, see if someone can bring you something beautiful from outside from time to time. My kids have always been so lovely with this. A cicada shell, a posy of autumn flowers, a droopy dandelion seed head with all the wishes, wished.  Treasures from outside to hold and to take your mind out there. Maybe you miss seeing all that beauty for yourself and it’s impossible.  Take a look at my photo series from Be Couper: How to Just Be.  She has generously shared some of her stunning photography for my readers to lose themselves in, when nature needs to come to you.

Be Couper Yellow Skies

Transport Yourself

Reading, listening to audio books and watching television series or movies will take you places!  Overcome your reality with a healthy dose of fiction. It’s brilliant to vicariously live the experiences you can’t easily have. Audio books are particularly helpful because you don’t have to lift the book or strain your eyes.  Libraries usually have a good stock that you can order. Sometimes even online!  The Book Depository has free worldwide shipping and a staggering range of titles if you prefer to buy. When I really want to get outside of myself, I call a close friend or family member overseas and indulge in a long chat. Imagining the things they tell me about, where they are, how it looks, how it feels. It’s armchair travel with the joy of connection. Bliss.

It changes how you see yourself, which(1)

Laugh

…because laughing raises your endorphins and happy hormones can’t help but leave you, happy!  Watch the comedy channel. Listen to children talking amongst themselves or playing games. Be silly.  Pull faces and do funny accents. We have a dress-up box and nothing makes the kids giggle so much as coming home to find mummy in an odd wig. Wear crazy things, if that is your thing. Listen to podcasts from clever comedy writers. Read funny blogs. Let your children choose your clothes for a day. Google jokes on subjects that you find funny.  Tell them to people. Recall funny memories and tell them to the kids. Friends.  The nurse.  And when you laugh, make it big!  Breathe deeper, laugh louder, linger longer on the funny bit. It’s good for you.

Find ways to tell people how much you(1)

Give

Chronic Illness teaches us so much.  We often would rather skip the lesson, thanks. But we get it. And consequently, we ‘get’ a lot about life; about what is important. About how to truly love. About patience, compromise, honesty and communication. Be generous with that hard-fought wisdom. Be a good listener. Do you have a talent or skill that you can offer?  A wonderful person I know is severely debilitated by her illness. She volunteered to cut up blankets for the SPCA.  Because she could do that.
Do the household tasks around you that are achievable. Fold those clothes.  Chop the veggies in your bedroom or set-up on the kitchen floor.  Whatever works for you. Maybe there is something else you can think of that you could do for someone? Find ways to tell people how much you appreciate them.  Because being generous is one of the ways that human beings become happy.  If you can’t give of your energy; you can give of your heart.

Find ways to tell people how much you

Find Your Thing

All of these strategies are things I have observed in people I admire with chronic illness.  Some of them work for me too. But for me, the greatest of all is writing. It is my favourite overcoming tool. Writing a blog is a focused habit of writing that I use as my therapy, my release, my way to help, my journey to memory, my connection with my community. If you would like to try blogging too, I recommend it. It can open doors you might never imagine. Being part of the blogging community has also introduced me to some of my favourite regular blog reads. It has given me a format for my research and learning around Dysautonomia and an avenue for meeting people I may never have met if I hadn’t begun to write. I can’t thank Kylie at Rainbows and Clover enough for starting me back at the keyboard, or my fellow Dysautonomiac, Michelle Roger, for sparking this blog by doing such a rad job of her own. And of course… Pip Lincolne for teaching me how to make it happen! I hope that someone else out there might find the spark too.  It’s helping me overcome, every day.  Ask me about it!  I have an online course recommendation! 😉

Whatever methods you employ, don’t give up. There are always, ways to overcome.

Find ways to tell people how much you(2)

Have I missed some good ones?
How do you distract yourself from the daily realities of chronic illness?

…and Christine? You are doing brilliantly. Thankyou for being such a stoic, thoroughly great person to infuse and enthuse with. Kia Kaha.  Stand Tall.

NB. to my shame, this one of the only Maori phrases I know, but it is useful and pertinent for a girl like me, I use it all the time!

 

Light Relief, The Tree and Me

 

source: harrypotter.wikia.com
source: harrypotter.wikia.com

I can be a bit intense, apparently. Is that a symptom of Dysautonomia?!  Ha!
I can get a bit serious.  Because sometimes it is hard to find the funny side of things.

But I can’t ever take myself too seriously, because I have been gifted a hubster who enjoys making fun of me (in a loving way) and making me laugh. A lot. His irreverent and naughty sense of humour has lifted me out of many a blue funk.  And I just unwittingly provide him with more comedy material, so it’s a mutually useful relationship.  Just lately, he’s been taking the piss (that is kiwi for teasing) about my self help studies.

One of the very useful exercises for self-care, one that I mentioned yesterday, is using your own hand as a ‘hand of compassion’. He thought that was hilarious.  I’ve been enduring his eyebrow toggles and suggestive looks every time I mention the ‘hand of compassion’.  He reckons he knows just where my compassionate hand should land, somewhere in the vicinity of his body.   Wink.  Nudge.  Eye roll!  He had the same joke about one of my favourite poetry books Where Your Left Hand Rests by Fiona Kidman. I think he hoped it was an instruction manual.  Honestly, are all men this way?

And then we were talking about a mindfulness exercise that I wanted to write about today.  I have been learning about how being “present” can provide you with an opportunity to calm down the negative self talk.  See, when I am thinking about how my body feels, it kicks off a litany of destructive thinking. This is a very common thought pattern for me because this body likes to slap me to attention, like an annoying brother, incessantly pushing the point, digging me in the ribs, lifting up my eyelids YOU AWAKE? RIGHT, SINCE YOU ARE PAYING ATTENTION… LOOK AT ALL THE WAYS I CAN ANNOY THE CRAP OUT OF YOU TODAY!  POKE!  SLAP! BLINDSIDE! THWACK!  And so I respond to that little shit with some very negative talk.  But I direct it at myself, because that is a bit less crazy than talking to my body as though it isn’t me.  I talk to me.  Inside my head. The track runs similar to this one:
Ugh.  Not again.  I can’t keep doing this.  Oh no…  so much is eroding.  I can’t go to school this morning to see my little guy do his thing. Another thing to miss, why couldn’t it be yesterday? I could have done it yesterday.  Poor me. Poor family. Ow… Yuck, that is so revolting, why do I have to deal with so much yuck stuff? How much worse is this going to get? Will my man get tired of dealing with me? My kids! Will I end up in a stinky nursing home, a drain on my family’s resources? Will I die before I’m ready?
And a freak out will be had.  Does that sound familiar?  Does your mind talk to you this way, too?

It is impossible not to be mindful of how my body feels. But by using the technique of mindfulness, it is possible to arrest the thinking patterns that give me anguish.  It’s like a kind of meditative awareness. So this is what I am doing.  Russ Harris (author of the book I talked about yesterday, The Mind Slap, and inventor of this exercise) says that if you are experiencing a lot of stress, you might need to do this excercise often.  It designed to help you be present with your pain. It helps you to develop the awareness of your thinking such that you don’t slide into the thought patterns that distress you.  The habit of that nasty self-talk that makes living with Chronic Illness a more scary, lonely, upsetting place to be.

THE TREE __ An Exercise in Mindfulness(4)Of course, if you are horizontal, you just have to adapt the tree image.  You can use your imagination about how to make the trees roots, trunk and branches work.  If I am stuck in bed, I use the foot of my bedframe to ‘ground’ myself. Or place my feet flat on the mattress with my knees up. Just adapt it to fit you, in your minds eye you can be any shape you want to be.  Here’s my audio version if you would rather listen:

 

 

So anyway, there I was last night, sitting in the living room, thinking about some serious shizzle.  I see my hubster out of the corner of my eye.  He is waving his arms around like he’s trying to get my attention.  I turn to look at him and all six foot three of him is doing an impersonation of a whomping willow.  In slow syllables he intones: “I am a tree…”  and I snort my tea.

Mindfulness is really good.
So is light relief.